ABOUT BRODY


Brody William came into this world on October 7th, 2016. Born with cleft lip/palate and a rare chromosome deletion, he continues to show us his strength each day. Since birth, he’s built up quite the following, being featured on Huffington Post, Today Show, and Scary Mommy.


ABOUT ME

Hi! My name is Sara and as Brody's mother, I want to share his story. It's not always easy, in fact, it rarely is (as most mothers can relate). But being his mom has given my life a whole new purpose - I am his voice, his biggest advocate, and his number one fan. Brody, this is for you.

OUR PURPOSE


This site is a collection of stories of our day-to-day life, from the ultimate highs to the lowest of lows - the reality of parenting. I hope that this blog draws more awareness to Brody's condition and can inspire mothers from all over the world who may be dealing with a similar issue. It's a simple reminder that every smile has a story.


CLEFT LIP & PALATE

1 in 700 people will be born with a cleft lip/palate. A cleft lip is a physical split or separation of the two sides of the upper lip and appears as a narrow opening or gap in the skin of the upper lip. This separation often extends beyond the base of the nose and includes the bones of the upper jaw and/or upper gum. A palate is an opening on the roof of the mouth. Children diagnosed with a cleft lip may have feeding and speaking problems (among others).

CHROMOSOME DELETION

Brody has a rare deletion of chromosome 9. A chromosome deletion occurs when part of the genetic makeup is missing in the chromosome. They may cause severe congenital anomalies and significant intellectual and physical disabilities. Chromosomal deletions are rarely suspected prenatally but can be detected with amniocentesis.